Monday, November 5, 2012

Ouch!

Poison Oak seems to be taking over our family. Julia continued to have the rash spread over her body and she was so uncomfortable despite trying every home remedy under the sun that I finally took her to Urgent Care. The doctor said that she also has a staff infection so it was good that I brought her in.  He gave her a steroid shot and prescribed twice the amount of Benadryl and an antibiotic for 10 days.  She has such a bad case that he said she may end up coming back for yet another shot.  If by the end of today she is not showing signs of improvement, we will go back to the doctor.  John, Andrew, and Jonny still have it, though not as bad.  I have now washed their shoes, we have cut nails, and they too are taking double the Benadryl amount. A few of the other kids have a spot here and there.  Ugh.


As if things couldn't get worse, I decided to learn how to pogo stick.  We bought a second one with a heavier weight tolerance so that John and I can use it.  After numerous attempts, I was finally doing it.  My record is 19 jumps!  
Then I dismounted and pulled a calf muscle.  I'm using crutches right now.  Fun.
Hmmmm, maybe 37 is too old to be pogo sticking.  But it sure is fun.
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I gave Oliver a haircut.
He sure looks like a big boy.
Speaking of big, he has grown so much in the past month.  I think he is up to 25 pounds.
Even though we have been given plenty of clothes for him, they just don't work.  Every time we pick him up, his shirt goes up and when he crawls, his pants slide off..  Sooo, I had to go out and buy him some onesies.
He is way too short for the pants, but they do look cute on him!
Oliver is standing more and more.  We are cheering him on.  However, I am concerned that he may need ankle braces.  This is the way he stands on his left foot.  His ankle goes in and the bottom of his foot arches up.  It doesn't look very comfortable.  Is this normal?


20 comments:

  1. I hope all the poison oak goes away soon!

    As for Oliver, people with DS often have low muscle tone and this can affect walking, so yes, he may need braces.

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  2. Laughing about the pogo stick in a nice way because I bought a bigger one for my older kids--but I can't try it because I totally messed up my knee roller blading on July 4 and it hasn't healed. The guy in the ER made a comment to the effect that a 50 year old doesn't have any business on blades--yet he was probably 15 years younger but so heavy he never got out of his roller chair, even rolled in it to the next room to get a new blood pressure cuff. Hmmm.

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  3. Nope, nope, he definitely needs AFOs. I am no therapist but if Ilse needs them, Oliver does. His feet are bending way, way more than hers. Have you gotten him evaluated for pt? You can get a prescription for an AFO eval from his pediatrician and go to a place where they will do it. I am supposed to get a prescription for Ilse tomorrow at her 18 mos well child.

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  4. Oh that Poison Oak looks miserable!
    We had a rash going on around here too, but not nearly as miserable looking. We headed to the doc and A was put on prednisone for 2 weeks! Then a script anti itch creme along with benadryl.
    Poor Julia can related to Job right now. :(

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  5. you need Zanfel. It will remove the poison oak oil, which is spreading all over your family. It can not be removed with normal soap or by washing clothes and so on. It is expensive($40) but is a very effective(immidiatly stops the spreading).

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  6. We get poison oak all the time over here, and there is a non-steriod cream that you can put in the fridge (feels even better cold) that really helps with itching. You can reapply all day if you like, unlike other steriod creams. It's called Sarna. Well worth the $ for some relief.

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  7. Not normal and he will more than likely need to wear AFOs. This is fairly common for children with DS. My daughter has cerebral palsy and her left foot looks like that. She has worn AFOs and has had a couple of surgeries. No need to fear as many kids do not need surgery.

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  8. For poison oak / poison ivy please purchase a product called Tecnu. It is available over the counter. When they scratch it spreads the oil and that spreads the rash. Tecnu was recommended to us by our doctor for my extremely allergic daughter. It works to cut the plant oil which stops the spread of the rash. It can be used at any time but is most effective immediately after possible exposure.

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  9. Goodness, I'm glad that Julia's staph infection is being treated. My son lost part of his outer ear due to staph and my brother's mother-in-law died from it. Scary stuff! Dear Julia has to be SO VERY miserable. I itch just thinking about it.
    Hugs,
    JEB

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  10. Just a suggestion about the poison oak, try keeping long pants and long sleeves on. It helps keep the medicine on and keeps you from rubbing/scratching. My 6 year old got a BAD case of poison ivy and the only way it got better was with a steroid cream and Benadryl. Do you know where the kids came in contact with it? We found ours in a bush right outside our front door. Good luck and quick recovery!

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  11. Yeah definitely look into some support for the little guy's feet. All little ones are flat footed but his is more extreme than even Igor's was and he was prescribed SMO's (similar to AFO's but shorter) now he's graduated from SMO's to a UCB that fits entirely in his shoe - a really beefy wrap around orthotic.

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  12. I am a PT and definitely thinks he needs a brace for at least that foot (probably both). He probably just needs SMO's though (they go only over the ankle) rather than AFO's (that go up to the knee). I love Sure Step SMO's for kids with low tone

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  13. Aww, poor Julia :( I really hope she feels better soon!! Staph...good thing you took her in. Serious stuff. Man, poison oak sounds awful!!!

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  14. I also get severe poison oak and we love tecnu, though we usually only use it right when we get home. If it is spreading to others it might be helpful.

    It looks as though the poison oak has gone systemic on your daughter and I always have to use pednisone at that point. And she should keep it covered at all times, that is probably how it is spreading.

    Praying she feels better soon, I know it is no fun :(

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  15. It's very common for kids with DS to need braces -- no worries! Oftentimes they'll just need Sure Steps (adorably patterned itty bitty braces) or some other kind of bracing to help give their low tone some support. You can find more information on the Sure Step website that I can't seem to paste the link to from my phone!

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  16. Poooor Julia! That looks awful!!!

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  17. We don't have experience with Poison Oak, but plenty of experience with Poison Ivy. I can say with confidence that once the resin(oil) from the Poison Ivy plant has been washed (with soap and water) it does not spread. But it can take some time for it to all appear on the body. Also (our home in MN is surrounded by Poison Ivy... and we have son who is very allergic to it.) The resin can be on anything that has come in contact with the plant- an animal, a ball, another person's sleeve or shoes ... and then the allergic person comes in contact with the resin and gets the rash. It is very frustrating! But the sooner you get the resin washed off with soap and water, the better (obviously.)

    One other thing to be aware of- if you are sometime having a bonfire and there are branches or leaves from the poison oak (if the same with poison ivy) it can be very dangerous for someone who is allergic to the plant to breathe in that smoke. The resin can actually get into their lungs.

    Good luck - good thing you've been to the doctor and she's getting treated!

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  18. Oh I sure hope Julia starts to get better...praying the antibiotics kick in. I don't even know her IRL, but she sure seems like such a sweet-responsible-loving young lady. Thinking of you guys.

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  19. Hi!When I was younger I was at girl scout camp and several members of the troop got poison oak. The girls walked in the poison oak patch while getting fire wood .It was dark and no one could see very well and the girls who touched the poison oak had to go to the doctor and receive treatment.Good luck, Pat

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  20. Another tip for applying creams, slather on the cream and put a layer of Saran Wrap over it. It will keep the cream from just absorbing into clothes, and it helps the medicine penetrate faster. My doc recommended it.

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