Sunday, May 22, 2011

Beginning Tuesday

After a year long break, I guess it is time to start again. I am referring to Dennis having surgery, beginning with new tubes this Tuesday. He should be in and out before afternoon, as long as the anesthesia goes well. I know that tubes require only light sedation but Dennis still throws up-- so I'll bring an extra change of clothes just in case.

About two weeks later he will be undergoing an hour and a half lower lid surgery which will require a skin graft from the area right above his clavicle. Thankfully this too will be an outpatient surgery. About six weeks after that, Dennis will have a similar surgery for his upper eyelid.

My hope is to have this all done before school starts in August-- with a new prosthetic in place!

As for Alex-- I hope that I can get an appointment this week for his leg braces. His newest pair which are a year old have rubbed off a patch of skin on the top of his paralyzed foot and caused a huge blister on his heel. Thankfully he can't feel it, but if he did he might not have let it get so bad. We'll never know. I am having him wear his old braces but the straps are falling apart. I wish that he had two pairs-- one for play and one for school-- you better believe I am going to ask. He will see the Spina Bifida clinic in a few weeks.

12 comments:

  1. Keeping both your boys in my prayers.
    xxoo

    ReplyDelete
  2. So much to do, so many appointments, can wear you down! Praying for strength for you.

    As far as Alex's afos...Can you leave them off until he sees the orthotics specialist? Red marks that last longer than 15 minutes after removal signal a problem. Blisters or skin abrasions are more of an emergency.
    He has had them a long time and obviously things have changed. Because he cannot feel normally, you will have to be his eyes and feelings. These things can turn Dangerous quickly! Infection is a constant worry.

    ReplyDelete
  3. Hope the surgeries go well. Thank goodness we are done after Jasmine having three this year! I know how it feels to have procedure after procedure.

    ReplyDelete
  4. Christy-- I was so worried, but things are actually looking better now. I have bandaids on and have switched him back to the ones that fit him right. I didn't know about the 15 minute rule, so thanks for the heads up!

    ReplyDelete
  5. Kathy, it is amazing what are kids go through! Glad to hear Jasmine is done!

    ReplyDelete
  6. Dennis will be in my prayers tomorrow as well!

    ReplyDelete
  7. I'll be thinking of you guys tomorrow and the following weeks. Hoping Dennis doesn't throw up!

    ReplyDelete
  8. I hope the surgerie goes good mom
    Rachel

    ReplyDelete
  9. You are so welcome! It is amazing all the things you have to learn with prosthetics and orthotics. :)

    ReplyDelete
  10. Hi! I make it a point to check my son's feet daily because due to his feet deformity a tiny sore can get big and deep over night especially if he did a lot of walking the day before . Good luck with the up coming surgeries your children will need, Pat

    ReplyDelete
  11. I know it's been a LONG time since I've posted a comment - but I've been reading the whole time, honest. ;) I wanted to chime in on Dennis' upset tummy after surgery. I have the same problem and finally (at the age of 35) they figured out the problem. I have a reaction to the medication they use on patients who's tummies get upset. Instead of a drug (who's name I can't remember), I have to have a drug called Zofran (commonly used in cancer patients.) The last two times I've had to be put under (wisdom teeth and an upper GI) I had absolutely NO problem (and I ALWAYS have problems). Maybe Dennis is sensitive to the other drug. Just a thought. Hope he's doing well.

    ReplyDelete
  12. Tamara, what a great point you bring up. He gets anti-nausea medicine now-- but it has to be a specific kind.

    ReplyDelete

I find your comments so inspiring! Thanks for visiting our family blog, and sharing your thoughts.