Friday, February 5, 2010

Miss Sveta Surprising

Someone recently asked me about Sveta.

How is Sveta? How does her FAS affect her today? Is Sveta able to be in a regular classroom? Is she able to make friends of her own? How do you see her Fetal Alcohol Syndrome affecting her tomorrow? Do you have a feel for what her future will hold? What kinds of careers she could pursue? Do you think she will be able to get married and raise a family successfully?

Well, I can answer the best that I could in the meantime, but one thing I have learned over the last four years is that how I think Sveta will be in a few years is totally underestimating what she will actually be doing in two years. This is so amazing because to put it simply-- Sveta has far exceeded what I thought she would be able to do and continues to amaze us everyday.

When she first became our daughter-- honestly-- it looked like her cognitive delays were moderate. She could not learn colors to save her life nor could she figure out how to use a computer mouse. She had no self-control whatsoever and got frustrated very easily. She could not ride a bike nor could she remember basic hygiene practice without being constantly reminded. She was unwilling to try new things and it suited her just fine to stare at you all day and play with your earrings. I had resolved to loving her for who she was no matter what and at the time, I didn't think she was even capable of even attending school in a regular classroom setting. In the back of my mind, I thought that qualified me for sainthood---- accepting her for who she was and getting the school and everyone else to not expect too much from her because she most likely couldn't do it anyway.

As a new adoptive Mom to an older child, I really had no clue how much a child, let alone a child with FAS, would advance after being in a loving home with good nutrition, lots of stimulation, and finally having an exciting environment in which she was free to participate in. This is a stark contrast to her previous life in the orphanage where she had limited food without a variety of nutrients, no education, and nothing to stimulate her brain. I had failed to realize how much these three factors affect a child's overall well being -- and essentially stunt their growth, their ability to love, their personality, their cognitive ability, and even their desire to accomplish new things.

Little did I know that with a proper, loving, family environment our Sveta would take off-- and grow!

Grow she did! She got taller, she gained weight, she let down her guard, she gained some confidence, and she finally began to learn at a rapid rate. Little by little, she learned to add, subtract, multiply, divide, and is now counting money and telling time. She can read, spell, write complete sentences, participate in (a regular) classroom activities, and even managed to memorize her favorite songs and a few bible verses. And yes, she has learned all of her colors-- even the color fuchsia!

Sveta is a follower by nature, a people person, and has made a few friends that are in her RSP (resource specialist) class-- but in general she prefers to hang out with adults. For the most part, this is fine but still we encourage her to go play and hang out with kids her age. Sveta has a hard time knowing when not to say something and so often she puts her foot in her mouth by letting someone know they have food on their face, or smell, or look funny today. This is a trait that few people can love about her--- but once you get to know her, you can see that she is totally harmless. As she has gotten older, this has gotten better, so I am optimistic that she will continue to realize that some things are better left unsaid.

As far as future careers, Sveta adores animals and is very gentle with them. When she wants to be, she is very responsible about feeding and caring for them. But like all things for her-- their novelty wears off and I have to remind her. But if it were her job-- I think she would be more diligent about it. Since she figures poopy diapers are way worse than picking up dog poop she absolutely and positively does not want to have kids-- unless it is the little boy Owen-- she will adopt him but no one else. As far as getting married-- she does not seem interested at this time, but I am sure that will change. I know that she thinks boys are cute-- and she fearlessly talks to the ones that she has gotten to know-- but for the most part she is very shy around them.

What I am most concerned about with Sveta as she gets older-- is that someone else will take advantage of her. She most likely would not understand what was happening and she could easily end up in a bad situation-- (remember that follower characteristic about her.) For now, this is not an issue because she stays with us or family 99% of the time outside of school-- and is perfectly content doing so. We have let her go to a friend's house, but we know the family well, and she has had a friend over-- but that is it.

As to her future-- only time will tell. At one time, I resolved to her living with us forever and never driving a car, but I am not so sure anymore. I can see her living with a few friends in an apartment or finding some really nice gentleman and getting married someday. She might even end up driving a car! One thing is for sure-- I will encourage her to live close to us so that she can visit often!

Over the years, we have both changed. Her being my daughter has taught me so much! In a special way, I think we both bring out some wonderful qualities in each other! I look forward to what her future holds! I can tell you one thing-- it looks very bright!

21 inspiring thoughts:

Rachel said...

What a joy it must be to watch her learn and grow and mature. I wish her the best, and know that God has a purpose and a plan for her.

Kathy C. said...

My son with aspergers in 19 and has no desire to ever drive. But he can use the city buses to go to work, college and about anywhere he needs to go.

Beth said...

I am so glad to read this post. In the past I got the feeling that you had low expectations of her. I have seen time and again that children will often achieve what is expected of them. I'm so glad that she is making such good progress (and you too!)!

I'd like to suggest an excellent book for you to read through and perhaps work through with Sveta. Don't be put off by the name--it has some very good information for any parent with a child with a cognitive disability. It's called "Teaching Children with Down Syndrome about Their Bodies, Boundaries, and Sexuality" It's the boundaries part of the book that I think might be the most helpful.

deb said...

Christine, this warms my heart! Praise God!
Deb

Martinfamily4 said...

I have a Sveta too mine is 5 years old...thanks for sharing....yes, those colors are so hard...even when you just told them the color 1 second ago and they just told you 2 seconds ago...somedays are hard - somedays it all clicks. God Bless!

connie_anne said...

I love, love, love, what you had to share about Sveta! My daughter was quite a bit younger when she came to live with us but displayed some of those same characteristics. The way she has grown over the last four years had totally thrown all my preconceived ideas out the door! She is doing things that I often though she would never be able to do! I have even had a few "experts" say how incredible she is doing and that her growth (emotional and mental) has very much surpassed what they expected! I believe her healing (because that is really what it is) is due to much more than a loving and stable environment. It is God! My Abby and your Sveta have been touched by His hands and their hearts and minds are being healed!

the j. crew said...

what HOPE we have in God! Praise HIM! What an encouraging post! Thank you for sharing!

Washer Mom Val said...

Lovely honest from the heart post.

Tina in CT said...

How wonderful to see how she has blossomed since becoming part of your family.

Bogarantyú said...

Wait, I don't even know what colour fuchsia is!

Now that said, Sveta is growing wonderfully. I do believe with your influence over her and maybe finding a wonderful church family and friends there, she will be all right. It's easy to get mixed up with the wrong crowd - but it's just as easy to follow the right kind of people.

I am originaly a special ed teacher and I just recently met up with a few kids - or rather, young adults now - from the 8th grade class where I used to student teach a lot. Several of those students live with FAS, and I was very happy to see how far they have come with living independently, being gainfully employed and dating really nice young men.

Dayne Gingrich said...

This is such an incredible blog... and you are just the most amazing person!!

Angels definitely live among us!

Marielle said...

I love reading this post, it shows your lover her.

srlsfamily said...

Christine,
What a wonderful post to read this morning. I have an 8 year old with FAS and it warms my heart to see someone with this beat the odds and progress. My son is also progressing - at his own pace - but continuously. I just had to fight for him at his IEP becaus of how he "tested"! So, good for you for fighting for Sveta!

Trouwbottom said...

Oh Sveta, you and Autumn would be best friends if we lived on the same block!!!!!!! Thanks for the update!

Story of our Life said...

Each beautiful in their own way!! That is all I could think about when I read this.

Heartwarming!! Thanks for sharing!

Love, Gala

The Kaysers said...

This is a wonderful description of your daughter and her advances. I pray that she will continue to exceed your expectations and I am so glad you are seeing that she can go farther than anyone can imagine! We have seen this with our Grady, he amazes us!

Keri said...

It is so wonderful to read how well Sveta is doing. I am so glad you shared.

Nan and Dan said...

that is s beautiful!! and so encouraging! amazing what the love of a good family will do :)

DysFUNctional Mom said...

This is so wonderful to read!

Carmencita said...

Mi querida amiga Cristina, leer este post me ha echo llorar, ambas tenemos cosas en comun ,tenemos hijos adoptados y con algun problema ,pero que amamos con tanta pasion que los problemas se disuelven ,te doy las gracias por haberte conocido y aunque el traductor google no es muy bueno te leo bastante y me gusta mucho.
Besos para tu preciosos 12 hijos y para ti y tu marido, desde Madrid ,España.
Tus amigos españoles
Carmencita y Miguel Angel.

4texans said...

Thank you for sharing. I was curious which dr you went to for the FAS diagnosis. We went to an IA dr in Long Beach who indicated our son had mild facial features for FAS. He is 5 and has been home 1.5 years from Kazakhstan. We try to be cautiously optimistic about his futures. While he seems bright, he does have difficulty with impulsiveness, self control, etc.
Katherine

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