Jonny runs over to answer the door.
"Look to see who it is first," I tell him.
"It is the mailman," Jonny says opening the door.
It was a letter that needed to be signed for.
Hmmm, that's interesting. I wasn't expecting anything like that. Of course, I signed.
"Thank you," as I flipped it over.
It was from the doctor's office that did Dennis' eye evisceration.
Instantly I knew what it was, but honestly felt they would not stoop to such a low.
It was a letter informing me that they were releasing Dennis from their care.
All because I expressed some disappointment over his pessimistic outlook for Dennis nearly seven months ago.
I guess I should be praising the Lord for shutting this door--- however, up until now they were the ones referring Dennis to his ocularist.
For now, all I can think to do is email our plastic surgeon to see if he can be the referring doctor from now on.
I can't help but wonder if I was out of line??? As parents, aren't we supposed to ask questions, be optimistic, hope for the best treatment available, push for doctors to do all they could even if it puts them out of their comfort zone a little?
One side of me wants to write them my own nasty gram, but I am above that.
Lord, help me to let it go.
19 inspiring thoughts:
Christine, I'm so sorry about what happened! God is in charge of Dennis' care, He will take care of him. I will be praying for you to feel better about the letter. I like your attitude about this. You'll do fine.
By the way, I had never heard of RAD in my life, and I felt so out of the loop until I googled it!
Ouch, that is painful. Don't follow my recent example. :)
I think it is a good decision to ask the ocularist to be his referring physicain. It sounds like you have a great relationship with him.
let the door close, and concentrate on the helpful, productive, supportive physicians in your life. and don't forget the Great Physician, praying for your family!
You know, I would write a letter thanking them from releasing him from their care. I would simply thank them for admitting they were not qualified and giving you the opportunity to find a more qualified doctor.
I have been reading your blog for quit some time now but I have never posted a comment. We all know that when one door closes another one will open and I believe that you will find another doctor who has the same optimistic outlook as you do and that is the kind of doctor Dennis deserves. One who will give him hope not bring him down. And at the end of this journey I hope Dennis is able to walk into this doctor's office and show him that he shouldn't have been so negative and should have had more faith not in his own ability but in the ability of the Great Physician.
Allana
I LOVE Shea's idea of writing a letter thanking them from releasing Dennis! Thank them for admitting that they were not qualified and couldn't handle his case. LOL!!! Perfect!!
I like Shea's idea too. LOL!
Seriously though - it does sound like they were pretty rude, and who needs to deal with that!?
Just think of it this way, doctors like that don't deserve to treat such an amazing boy as Dennis.
Praying God leads you towards whomever He wants Dennis to be seen by.
since Kyler alsways gets his care at U of what ever, and they are teaching hospitals. I guess they have to put up with me. but then again, its a teaching hospital. I feel I am giving the new docs a run for their money, teaching them more. hehe sorry that happened.
hugs and prayers......doomsday worse scenario drs.........I dont give them time of day....they love to paint it bleak without knowing the child, the family or what faith can do. A child like Dennis has a stronger spirit than his challenges and can overcome things that will amze drs....
my son...has had many challenges...albeit not quite so hard as Dennis BUT doomsday drs...I dont listen too..........their doomsday predictions about his growth and that HE HAD TO HAVE a deficiency.....a devastating deficiency has been proven incorrect.......he is just little....and they said he'd be all depressed about his size etc etc.....by this age......nope......he is not....he loves life......and being tiny doesn't stop him.....asthma doesnt stop him.....severe allergies doesnt stop him........sensory issues do not stop him.........and Dennis is that type of child....from reading your blog....nothing will stop that child.....he lives life with gusto...vim and vigor.......you have a treasure......just some of the medical experts havent figured that out yet...hang in there........and standing up for your child is never wrong......hugs and prayers as God helps you through this hurdle.....
Sorry that it had to come to that! But, if that Dr is not comfortable treating Dennis, then there has to be someone else for the job... probably better too! Praying for you!
One door has closed, but there is always a reason and we trust that He will help along the way.
My 19 year old left college 5 weeks into her freshman year due to an eating disorder. We did what the doctor said - brought her for biweekly weigh-ins and then Thanksgiving hit and her weight plummeted. The week before Christmas, the doctor wanted us to take her to the psych ward (our insurance didn't pay for the outpatient eating disorders clinic)and the doctor said she would lie and say that my daughter was suicidal and we could get her admitted to the clinic that way. I couldn't do it. Our doctor didn't even have the guts to tell us she didn't want us to come back. She told the secretary to tell us that we didn't need to make another appointment.
We recovered and so did my daughter. She just made the dean's list at the local community college. It's taken a LOT of prayer and a good therapist. Prayers for you and yours. Leesa
I love what Shea suggested!
I know it's hard to take, but you should be able to voice your opinion without his doctor getting his nose out of joint. I am honestly so sick of doctors and their attitudes. Luckily there are MANY other doctors that will be Dennis' doctor and referring physician. I say, walk away and forget it!
You were not inappropriate at all! Unfortunately CA has a bad track record of people suing just about everyone for everything in healthcare so he probably thought you were just getting in line! God will make a way, take it as the blessing it truly is! HUGS!
You are totally in the right to know that you are the best and only advocate your child has right now. I know exactly what you are talking about, some Dr.'s only see what they want to see, they can only know from what they've seen in the past, therefore can't see each child individually. I know Luke always gets stuck in the "near drowning kids group" regardless if he is the same or not, they shouldn't lump kids together into one huge group. Just like us parents shouldn't lump our child together into the same group, they are all individuals though they come from the same family. Whew, sorry didn't mean to make this so long, can you tell,I've had the same frustrations?
Love in Christ,
Suzi
It is incredibly disappointing that a professional, a doctor no less, would let something like an upset parent (especially if/when it was justified) just because the parent may have hurt their feelings, cloud the doctors ability and willingness to treat a patient, especially if they dropped the ball.
Hopefully this will be Gods leading to a more qualified/skilled doctor who HE trusts with Dennis' care.
I am so sorry this happened! I think it's a good idea to ask the other dr to be his referring dr. It's OK as parents to voice our opinion, but some Drs. get offended at parents who believe possitive instead of their always-negative outlook. Hang in there!
That is terrible! I do not think you were out of line. Let it go and figure something else out. I know that feeling though of wanting to just rip into them!
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