Monday, November 10, 2008

Short and Warty

These juicy, little, tart gems are actual pomegranate seeds (my husband says they are arils). We eat them, seeds and all, by the handful just like you see here. I didn't like them very much in the beginning, but now I love them! Andrew likes them now too! Good thing, because we have a ton.


Andrew has what appears to be warts inside his nose. I am not sure what to do. If I take him to the doctor they will probably want to freeze them, which he is totally against. I think I may try that duct tape suggestion when he sleeps at night, yet I am a bit worried that he may have trouble breathing. I wonder if salicylic acid would work?

I bet you don't envy our little problem, do you? (smiling)

Speaking of problems, I got some very disappointing news today. We got the call that Anna's growth hormone treatment is ready to be shipped and all we have to pay is $1554 which is our 30% portion. I nearly choked when they repeated the cost of a three month supply. There is just no way I can pay that in good conscience in this horrible economy especially when it is not medically necessary for her health. I am disappointed needless to say. I have already called the manufacturer back to see if they can help us out, and I have called the doctor to see if there is a less expensive alternative....... maybe a generic brand.

I have thought about this all day, and I have put myself through the ringer trying to rationalize this decision. Maybe if we didn't have so many kids, I wouldn't mind paying this outrageous price for this medicine, but honestly, I don't think this is the case. I knew from the beginning that this treatment was costly, but I never in a thousand years assumed it would be this expensive. I feel duped by the doctor's office who I told from the very beginning that I didn't want to pursue this if it would cost a lot of money, and they said that we shouldn't worry about it because our insurance would cover it. I know I might get some negative comments about how I could possibly deprive my short daughter this drug...... this opportunity to grow an extra few inches, but as mother who is responsible for the well being of all my children, I have to use common sense and budget the money that we have which doesn't include this expensive treatment that may or may not work. Sigh......... I am going to look into some other options....... perhaps there is a mega vitamin I can give her.

If you don't mind, please pray for this situation. If Anna is to have this medicine, then God will open a door........ but as of now, I think we need to close the door and move on.


Today, I got a sneak peak at Dennis' eye as I cut away the dirty part of his bandage and retaped it. It looks totally different, but not necessarily in a good way. I am disappointed and concerned, yet I know that this is only temporary. The scar tissue which was the banding that went vertically down his eye is gone and now his lower eyelid sags---- which for the time being looks kind of freaky but in the long run is a good thing because it has enough give to be pulled up so that it could be sewn shut. The bandage comes off this Thursday, and a big consult with the plastic surgeon is on the 18th.

Tonight, after getting Dennis ready for bed, I asked him to come down stairs with me. I told him to turn around and slide down and he wasn't interested in listening to me so I scooped him up and laid him down in the big boy bed. I told him that he had to listen to me and that since he didn't want to do what I told him, he had to go to bed now. I kissed him and left the room with him a little pouty. I stood at the door to see what would happen and my good little boy stayed put. I went back in and laid down next to him and rubbed noses "forever" with him. I pulled away when I thought he was asleep and saw him look right into my eyes.

"Kiss Mama, please Dennis," I asked him and without hesitation he leaned forward and touched his lips to mine. He can't actually pucker up and kiss, but I know that this is his way of kissing and oh how adorable it is!

Big sigh........... I wish it was this easy with all of the kids. I wish I felt this lovey dovey all the time with all of my children even when they choose to disobey. I mean that it is just so easy to love a baby.... at least it comes naturally to me, compared to a child who loves to argue, do the opposite of what you ask, and complain about the injustice that surrounds only them. Loving them becomes work--- work that I would never want to give up doing, but nonetheless work. Sometimes, my older children can be so hard to be around let alone want to rub noses with.

Okay, enough beating around the bush, I am speaking about one particular daughter who has just been really challenging lately------ maybe all the time, but more so now than before at least in my opinion and I had a bit of a wakeup call yesterday--- which is what really opened my eyes.
As I was talking to my son Adam, my one daughter comes up complaining again about something being unfair and in his midsentence, I turn my attention to her. A minute later, I went back to him as he was walking into his room and I said, "You were saying...."

"Never mind Mom, you always give her your attention first."

This is a problem. Not his problem, not her problem, but my problem as a parent, and I need to find a way to fix this problem. As I got to thinking, this is not a problem resulting from having 11 children because after really paying it some attention, I realized that all of my kids immediately get put on the back burner when my one daughter has an issue. (Very hard to admit) None of my other kids consume so much of my time----- none of my kids are as hard to get through too. Another big sigh, this is living proof, my parenting has not yet been perfected.

I am forever committed to my daughter, and to all of my children....... I just want to make sure that I learn how to spend equal time with all them, or at least not cut them off when another child tries to come and interrupt. My desire is to have the time that I spend with my children be a time where they are sharing about their day, their interests.... maybe we are playing a game, or cooking something together, or shopping, or talking about life. If my one daughter wants a huge chunk of her time to be spent on discussing how she can make better choices that is her decision----- but as of now, I am going to make a valiant effort to stop the lecturing.

51 awesome people said:

Anonymous said...

Please be very careful about putting any kind of chemical inside of his nose. It is a mucous membrane and not like normal skin. Things are absorbed differently and can go to places that you may not think possible.

Tracey said...

Oh, Christine, you do such a marvelous job at mothering your children! I learn so much from reading your blog. ALL of your children are so very blessed by God to have you in their lives as I know you are blessed to have them in your life.

I have four children, ranging in age from 2yrs old to 17yrs old and on the interrupting thing....just one suggestion, not that you were asking, by any means. I found myself always giving the "interruptor" the attention, instead of the child that had my attention in the first place.

What I did was teach my children to place their hand on either my shoulder or my leg to let me know he/she needed to talk with me and I would give him/her a signal that I knew they were waiting & they knew that when it was appropriate, they would have my attention. Typically it's simply a "thumbs up" signal or my placing my hand back on their hand so they know I will be with them when I can. That was a huge breakthrough for us since I have such a huge age-gap in children. One may need "boy" help while the other needs to know how to operate her new Barbie toy and then the little guy is wondering when he can nurse....sigh! Please know that is just a thought and not that you need any advice (you do a great job, from reading your blog...I have SO much yet to learn!!). The above suggestions were given to me years ago by a momma of numerous children on how to handle interruptions without any of the children's feelings being hurt.

Have a great week! I'm enjoying a 4.5 day weekend with my kiddos!

Tracey (my daughter has healed amazingly well since her surgery and we are muddling through all the emotions of my dad's death 13 days after my daughter's heart surgery)....

My Three Sons said...

First off, thank you for leaving a comment on my blog. If you don't mind, I would love to put you on my blogroll and follow you as well. I have went through a lot of your blog and WOW 11 kids. One of my dear friends that my family goes to church with has 6 children and I always have to laugh because we all play on the same soccer team as well and after church we will take all the kids out to eat and we usually end up with a couple extra kids. It is really hard to expain to the waitresses that 9 of the kids really belong to us.

As for your medical treatment, my two year old aspirates when he eats and drinks and we have to put a thickener in his drinks and of course insurance will not cover it. It cost around $175.00 a month. So I called the company and asked for a hardship program. Have you contacted the actual company to see if they could help out? They may have some type of scale pay.

As for the wart, I used to be an EMT so I have a little medical experience in me. You really need to go to the doctor on that one. It is an airway and just like his eyes and mouth, his nose needs to be treated differently than say his fingers.

Dennis is such a beautiful little boy. I will pray that his eye will heal.

As for your daughter, well I have two boys that are 12 and 13 and I think it just comes with age. Sometimes they get thier feelings hurt because they think I'm giving my two year old more attention. Well I probably do. He has a lot of medical problems due to asthma and he is a very busy two year old. I'm sure my Carson is busy like your Dennis. Girls are always drama queens anyways. I pray for you to have patients with her. Someday she will "get it".

Take care and again, nice meeting you. Thanks for the recipe.

Mike and Gail said...

We did the same thing as Tracey with our boys, they learned all of that before they were 8(oldest) (Growing kids God's way)
But when we brought the girls into the family things got a little hectic. Now I have learned, as I get distracted easy. I just put up the ingore button, Or turn my back on them. They get the point, when I continue my converstation with whomever. We have good days and days that they all talk at once. My head goes spinning. LOL... Sometimes those days I send them all off to bed early and then...Calgon take me away. :D

Chelley said...

From what I understand it is something that you need a doctor to get it removed as the inside of the nose is somewhere you just cant put normal wart stuff...

Also inside nose warts need to be treated very quickly as they spread very fast.....

DysFUNctional Mom said...

I have such a hard time keeping four kids happy, and not hurting feelings, that I cannot imagine how you do it. Please don't be too hard on yourself.
My Princess had a wart on her nose but not in it, a few years ago. We took her to a dermatologist, we didn't want to play around with it since it was on her face. They did freeze it off but it was very quick and simple.

Tina in CT said...

My suggestion is not to fool around with the wart and take him to the doctor.

As for your daughter's growth hormone, call the manufacturer. If that fails, do all you can to find a source for the money so not to deprive her the chance for growth success. Being abnormally short once she gets into her teen years could perhaps lead to issues she'd have to deal with.

Isn't Dennis going to eventually be getting a prosthetic eye and the skin will be formed for a lid?

Jane said...

Check with all the suppliers of growth hormone to see how much it would cost you. They all have assistance programs. If she is GH deficient, then they will probably help you out. If she is SGA, maybe not so much. We pay $150 a month for Ben's GH. However, he's way off the bottom of the charts (still fits in 4T clothes & he's 7 1/2) and being a boy, I think it's even more important to gain as much height as he can.

Jen B. said...

I really hope a door opens for these hormones. I'll be praying for that to happen.
You are a wonderful mother with wonderful children! None of us are perfect mom's... so don't beat yourself up. All we can do is pray & try to make things the best we can. God will take care of things!

Nancy said...

Hi Christine--I'll pray that you find a lower cost alternative for the growth hormone. Another idea...does John have a flexible health care account through work? You could put aside the money for that next year and at least pay for it tax-free.

Best wishes!

pearly1979 said...

I hope the situation works out with the growth hormone so that you can have peace from all aspects, what is right for Anna and what is right for your family as a whole.

I have the same problem with one of my children (often negatively) soliciting all of my attention. I often feel it's because I need to give her more positive attention but I find it very hard to do when she is constantly breaking rules, doing things her way, being sassy and disrespectful that it's hard for me to turn things around.

Lisa said...

My 14 yo son could be put on hgh if I okayed it - but I'm not going to just yet, even though insurance (Medicaid through the foster care system) would probably pay for all of it. The endocronologist said that it "might" help him grow (he's 4 ft. 5 in. and 65 lbs) but no guarantees or even good odds. I had to consider a few things in our case. One, do I want to risk future medical issues for the sake of maybe a few inches (or none at all if it doesn't work on him?). Two, my son is very, very FASD and while he can pass for normal and can convince others that he's fine, he's not normal and not fine. If he were to suddenly grow several inches and pack on the lbs., I can see him becoming a danger to others (namely, his siblings and me) so in the end, it is so NOT worth it. I think he will be the size he will be, hgh or not. When he's an adult and if there's still a window of opportunity for him to do this on his own, fine. I won't be worried about the safety of his siblings - he's not entered puberty at all yet (unless you can count the mouth that argues all day long).

This same son is the one who has been sucking all of the attention out of the room his entire life. He was placed with us at 10 mos. and has been screaming for more every since. Nothing is ever enough, there is no fairness in this world for him. If I give him exactly what he asks for - he demands more. If I don't give in to demands, he screams and cries and follows me around like a 1 year old. He's perfectly behaved for the doctors who could help him. I've seen firsthand how his neediness has harmed my relationship with my older kids. You need to have your needy child put in writing all her complaints for you to look at when you're free and if that doesn't work, separate her until she can behave like one of the family instead of a "universe unto herself". Some kids are way more self-centered than others and they will destroy your family if you don't get control NOW. My son is brain damaged, I get that, but it's still not okay for him to get the lion's share of Mom time, Dad time, and hurt his siblings like this.

June Berger said...

As a nurse, I agree with a doctor visit for the nose warts, not an area to "mess" with.

GH, I would check with the companies also, to see if they have a program that will help. But if not, I too agree with not doing it due to the cost. It is NOT life threatening. Would it make life easier/better? Maybe, (if it works), but maybe not. Do the docs say how tall she will be if she doesn't receive it? I'm 4'11" and my dtr. is 4' 10" (on a good day, lol, she's 23). When I was younger I minded being shorter, but I don't even think of it now. Sometimes people will say "oh my, you're shorter than I thought". My reply is, "oh, yeah, I probably am...(giggle)" I truely don't notice it, except when I'm reaching for stuff, but I've always had to stand on stools or get something to reach items.

We HAVE to pay for my son's diabetic supplies every three months, it costs about $300 (our co-pay, it's literally thousands, he uses an insulin pump since he is such a brittle diabetic). I know that isn't really a lot, but even that can be a struggle some months. I truely can't justify paying thousands of dollars on going for something that isn't certain to work and isn't necessary for life. I know it may sound harsh, but one year would be about $6000, and for how many years? PLEASE don't think I'm saying our children aren't worth that, they are worth ANY price, if it is a matter of life and death, but in this case it isn't. And that would be a huge financial hardship for the entire family to absorb. My dh and I wouldn't even have something that costs that much as an option! There's no way we could take that much from our income every 3 mos! But, if you and John find a way to fit it into your budget, Praise God, I'm NOT passing judgement. I would LOVE to be able to afford something like that for my children, I just wanted you to know I fully understand/agree with your not doing it, not that you need MY approval, lol, just wanted you to know someone understands your point of view.

Sorry that was so long winded, ;o)

As to your dtr. that requires a great deal of attention. My dd is the same way (the 23 yo, STILL). If she calls on the phone and I'm in the middle of something with one of the other kids, I just tell her I'll call her back when I'm done. If she is next to me, I just hold up my hand (STOP) give her "the look" and carry on with the child I'm with. If she persists in interupting, I tell her to "wait a minute and I'll be with you as soon as I'm through with...." I too found that she required a LOT more time AND energy. I feel like she can suck the life right out of me at times. I still love her dearly, she just has a different personality than me (totally different!), and I find it tiring. I lovingly call her my High Maintenance Babe and she knows it and admits it as the truth. She IS trying to be less demanding, but I believe she has a long way to go....

mason's mom said...

You need to take Andrew to the doctor for the wart removal. Sometimes you can get medications from Europe for cheaper you just need the prescription.

janiece said...

Definitely contact the doctor regarding the "warts". They could be something totally different and need to be addressed medically. I second (and third) what everyone else is saying regarding being careful since it is a mucous membrane.
Regarding the growth hormone. Contacting the manufacturer is a good idea. The other thought is--is there a social worker associated with your doctor's office? They have access to so many different things that help out with expenses. Most states have programs to help with co-pays. Here in Wisconsin one program that comes to mind is the Katie Beckett program which helps with odds and ends--insurance will cover some but not all stuff, etc.
With just the 3 kids I have the interrupting problem too. I can't imagine 11! I'm trying to teach to interrupt when it's an emergency but no other time. "Julia, your brother is talking now--you can talk after". It's a never ending battle. Eventually maybe they will get it. You are right--sometimes it is harder to love one more then the other. I heard someone say once when asked the question who do you love the most--the answer "The one that needs me most at that time". I like that answer because as a parent that is what we do--answer where the need is the greatest.

Kathy said...

I almost didn't leave a comment because you already have so many longs to read through but I really wanted to say that I understand about the disappointment with Dennis' eye because I am very disappointed in the outcome of Jasmine's surgery. She had a huge, very noticeable scar and the webbing is back anyway.

I also understand about one child getting more attention because Adam gets more than his share of negative attention, taking away from the other kids. And I only have four in the house right now.

Jillene said...

YOU are such a GREAT mother!! Things will work out--they always do!!

Courtney said...

We're working on the interrupting, too. The problem for us isn't how I handle it, it's that I'm not consistent in how I handle it. Sigh. I'm working on that. ;)

Lisa said...

My son had to take growth hormones. We had a very unreasonable copay like you mentioned. I have some information that may help you. You can find my email on my profile if you are interested.

Expat Mom said...

First of all, I wanted to say that even if you only had Anna, that would be a LOT of money to pay for treatment. So having 11 kids doesn`t factor into it, I don`t think.

Secondly, good for Adam for bringing the attention thing up. I`m sure it was painful, but it`s also important that you realize what`s going on so you can start doing something about it. I was thinking, I`ve heard about mom/child journals where you write each other in a special journal and it`s a safe place to talk about problems and issues . . . might that be useful with this daughter? It could be something special for her, a way to communicate everything with you, but without taking all your attention away from the others.

Seriously, I don`t know how you manage so well . . . I have troubles just giving TWO kids equal attention!

Amy said...

Hi Christine!
I can say that in alot of ways - I feel your pain!
My son is extremely small - very proportional - but short for his age. He is 10 and a half and still wears size 5/6 and weighs 52 pounds - most all that is muscle.. he is not scrawny in any way! We briefly looked into some growth hormones but the risks outweighed the "possible" results. I do know that it is harder for a boy to be shorter... I was told that if there was any background of FAS or FASD that growth hormones could be ineffective. For us - we stopped there - as we know that the birthmother already did enough damage to this kid - we did not want to do anymore!
Of course the growth hormones are completely the familys personal choice! That IS alot of money to spend on something that may or may not work! Maybe some of that money could be spent towards enrolling her into something that would be a more "fun" experience for her to grow on the inside.. like gymnastics or dance or an art class... just a thought!

Please don't worry too much about Dennis' eye! I know early results can be deflating.. but he does have more procedures to go, and he also has alot of growing to do!

God gave you the wonderful gift of Dennis... he decided not to wrap him in fancy paper because he knew that you would cherish the gift on the inside more!

Best wishes and hugs!
Amy

Leah said...

About the growth hormone: It does NOT just affect growth!!! When a person is growth hormone deficient it affects their entire metabolic system, NOT just growth! It's an important piece to the endocrine system. If your endochrinologist didn't explain that to you, then you need to find a different endochrinologist. Then there are lots of things to consider for her as an adult with short stature. Will she need accommodations made to a vehicle in order to drive? Things like that. (and no, there is no such thing as generic GH. It's incredibly expensive to produce, and I think there are only 2 companies that make it.) Contact the Magic Foundation. They're an organization that deals with growth disorders. They can help you find ways to get the growth hormone covered. They were incredibly helpful to us when we were going through the mess of getting therapy started. http://magicfoundation.org/www If you need more help, let me know!

Susie said...

There's a possibility that you can get Anna's medication from a Canadian Pharmacy for 1/3 or 1/2 the price. The doctor should know about that. My mom gets her arthritis medication from them for less than 1/3 of the price.

Laurel said...

Christine,
We get one of our medicines from a Canada pharmacy also. Call me if you need the info.
Laurel

Heather said...

I certainly had this battle, also, since one of my children consumed much more time and energy than the others. (And it was NOT Davin:) It is a really hard balance and often times my one child would feel slighted because I would be short-tempered with her after dealing with the more difficult child. IT is a difficult balance, but you are aware and you will figure out.

Praying for Dennis and all of you as you adjust to each surgery and the changes they make.

Kelli said...

we just have normal insurance (back a few years ago) and Kyler took groth hormone to grow. We didnt have any co pay???????????????

Heather said...

Christine,

You are such a wonderful mother.

I completely understand feeling like one child sort of monopolizes the share of mother's attention. I have a son who was completely traumatized in his previous home environment. He basically came to us as a "feral" child as the State called it. He has been with us 2 1/2 months. He is precious, very tender, and desperately wants to please. But he appears to have autism, and he is overwhelmed in our house with 2 very outgoing babies and 2 teenagers. I know he feels overwhelmed, but it guilts me that my other 4 children get my remnants. He went from almost a year of solitary confinement to living in with 4 siblings and he seems very overwhelmed. Therefore he screams and whines constantly. He is jealous if I am looking anywhere but at him. I do see some improvement in the past week, but only because he had 103 degree temp, and was too lethargic to make noise. He actually cuddled with me, which I enjoyed so much. All of his therapists are working with us on this, and my other children are as patient as can be expected. He seems miserable in a home with other children. He is only truly happy when he is in a room alone with me. Any suggestions? He is almost 2.

Carey and Norman said...

I've enjoyed catching up once again. I was excited to see that the surgery for Dennis's eye went so well. I didn't realize that was last week. So sorry I didn't check on you before today. You remain in my thoughts and I always enjoy reading your blog. Your family is amazing and I enjoy seeing that we all go through trying times as a parent. You give great advice and I always enjoy reading your posts!

I look forward to reading more soon and will pray for Dennis's recovery.

Stephanie said...

Christine, there are different founadtions that provide assistance for co-pays. the Patient Access Network is one that I know of. I'll bet the pharm company you are working with can point you in the right direction.

The co-pay for Ralph's Synagis, for RSV, was over $500 per month last year. The Children's Miracle Network helped us out for one month. I believe that they can help a family up to $500 per calendar year. If they were to help you in December, then they could theoretically help again in January until you figure something elso out.

Another remote idea would be for your doctor to file the injections as "major medical." Sometimes the coverage is better this way. How long will she need the treatments? I know that HGH is not active in the body very long. Will she need it every day?

Also, if you are going to spend a bundle of money anyway, get an evalutaion from a doc who specializes in complementary medicine. I believe there are secretagogues, compounds with amino acids and growth factors, that can engourage your body to make it's own growth hormone.

I don't know if any of these suggestions are worth much. Take or leave them. But I pray that God will make a way for you to provide all that you want to provide for your beautiful children.

By the way, I'm cooking a deer neck today for the first time. Should be interesting!

4 princesses & then 1 prince said...

Christine,
My little brother took GH for a number of years and yes, it was VERY costly, even with a good insurance program. I may have a good source for a program you can contact that will bridge the difference between insurance & "your cost". If you're interested in the info, you can email me at kabeso@msn.com.

BTW, love to follow your blog. Your children are precious and your devotion to your family is admirable. Take care.
Kaylynn

Trouwbottom said...

Christine, I totally get what you are saying about your daughter. My Autumn is the same way. I only have 2 kids and it always seems like all my attention goes to her. I had several occasions when my 14 year old said the same thing as Adam did to you. It's heart breaking and yes we need to learn how to parent our "difficult" child without having the others suffer. I'll be praying for you!

Anonymous said...

i agree with some of the bloggers. not giving the GH can cause alot of problems other than height. please dont automatically say no. discuss with your drs, drug companys, shriners, lions club, st judes, etc. i would not even mind contributing money for the med until you can work things out. put up a donation button until you can work something out.please give the gh. drug companies often give samples as well as coupons for money off.remember you can use it as a tax deduction at years end. seriously christmas is around the corner i bet all your bloggers would donate until you could work things out otherwise.

Memories by Maleri said...

Oh gosh Christine, I'm sorry it's been a trying day. It's always hard when you realize you're yet again doing something wrong. I had one of those the other day. As for Anna, you know if she's healthy and fine, I say let it be. It won't be emotionally damaging for her to be small. In fact there are perks sometimes. She would be a great cheerleader. =) But you know, if it were something for he health, I'd say go for it, but I don't think it's going to hurt her not to have it. My oppinion of course. You know it is funny. You talk of your one daughter and my oldest right now is giving me grief too. She does not listen to me at all. Nothing works with her either. I've tried time outs, going to bed early, spanking, chores, nothing works. I have to remember she's only 4. But I know she knows better. She's so affectionate too that it breaks my heart. She's always saying I love you and sorry mommy. But then two seconds later she's doing it again. What would you do? I'm so blank. You are so intuitive, you will figure out what to do with your daughter and if you have any ideas about mine, please feel free to share. Love your face.

Tami said...

You've had so very many smart people leave you comments today, I hesitate to add my two cents. So I'm just going to ask you to keep us up to date on what you decide to do with your daughter's growth hormone. Anya is in the same boat...and since we don't have good insurance right now, we aren't doing anything at all medically. We're hoping we can get it all straighted out BEFORE we have a medical crisis. I would be very interested in hearing what alternatives you come up with.
When we first brought her home, Maddie also had to go to the doctor for little warts all over her body. She had the ones on her face frozen off and it wasn't horrible...but not all of them disappeared. Now that we're without insurance, we're biding our time and hoping they won't spread too badly until we can get her in to another dermatologist.

Memories by Maleri said...

P.s. I forgot to tell you. There is a girl in my ward that has something that stops her growth too and she's only 4ft 8. She graduated for HS last year and she was a great cheerleader, and drives fine. Even though they say you need a booster until your 4ft 9. =) She's happy and got a scholarship at a University for cheerleading. I don't think it harmed her at all. It's much more important about what they think about themselves on the inside. Don't know if that helps, but I know growth hormones can affect their moods and stuff like that too, and my brother got really mean when he was on growth hormones. Just food for thought.

traceylynndel said...

There is a cream called Thuja that removes some types of warts after using it twice a day for several weeks. There is also an essential oil called Neem oil that will work on other types of warts. Try healthfood or nutritional stores. We get them from our chiropractor. There is a Chinese herbal supplement for growth hormones. I'll try and get the name for you.

Tracey

Jason & Melanie said...

Christine~ It is always so comforting reading your blog with all of your honesty about your children and your feelings. I can so often relate to the things you are feeling. With this post, I really related to how easy it is to love the "baby" of the family and how hard it can be to practice unconditional love sometimes to the older ones that have deep issues and we have never been able to experience that cute baby smile with. Never the less, like you, I am determined to tap into God's unconditional love for me, which I can draw from to love unconditionally. By the way, I have asked before, but I might have missed the answer...Is Andrew from Ukraine. He looks so much like our Vitali to the point that my kids think it is Vitali when they are looking over my shoulder when I read your blog. I would love to know where he is from. I know you can't possibly have a lot of free time to post on other blogs, but if you ever get a chance, I would love if you could let me know.
Melanie

Tina in CT said...

I went grocery shopping Sunday and the local chain store had pomagranates but they were 2 for
$4. I pictured the big basket that you had and was green with envy. I didn't buy any.

I eat the entire red seed and all.

Anonymous said...

Hi Christine,
Was this treatment developed especially for Anna from her test results?
If not, would you feel comfortable saying here which drug it is and the mg's she would need. Because of licensing restrictions I cant say who I am but I can look up pricing for all manufacturers, which you could take to your Dr. to have them do a little more research on pricing. I did just look up one gh, and there are several different companies and there is a generic. The prices really have a large range from fairly reasonable to very expensive for the same drug depending on the manufacturer.
I really dont understand why they couldnt give you a price before they started with preauthorization from your insurance company.
Also if you decide not to go through with it, dont let them bully you, saying we already have it, we cant send it back or some other excuse, especially if they didnt tell you exactly what you were going to have to pay.

Octamom said...

I'm glad that Dennis is through this dramatic part of the surgery schedule and I hope that as the swelling recedes and the healing begins that you are able to see what you are hoping for future surgeries.

I just love coming over here and experiencing again the amazing heart you bring to your mothering. It is such a joy to see your incredible family grow and learn--

Blessings!

Christine said...

Hi Anon,

Anna's medication is Nutropin AQ in 10 mg vials. If there was something you could do, that would be such a blessing.

Anonymous said...

I will check tomorrow on pricing. One thing I did notice by looking it up online is the Nutropin AQ is just a liquid form of Nutropin, that can be used in pens, a convenient less hassle way for patients so they dont have to reconstitute a powder form. If you dont mind adding some sterile water and swirling it yourself, its probably quite a bit cheaper, I dont know for sure right now, but its worth asking your Dr. about also.
Somatropin is the generic term, which is what I had looked up earlier.
If you have read anything about pharmaceutical companies they often give little kickbacks to Dr.s who push their drugs. Im not saying that is the case with yours, but by not giving you some generic options I would almost question that, but I will let you know tomorrow.
Have a good night.

Christy said...

Christine,

There is no such thing as a perfect parent so don't beat yourself up. Do the best you can and put the rest in God's hands. I have to remind myself everyday that I can do all things through Christ who strengthens me.

Annie said...

As for Anna...you probably remember that I was always rather feeling hesitant about "artificial" growth stimulant. For one thing, you just wonder about the "discovery" that might take place 15-20 years in the future when they discover the side effect.... And I suppose I just feel that small is how God created her. One of my favorite students ever was just tiny - both of her parents were also extremely short. Being little was just a part of this girl's "being".... And she played (very successfully) on the basketball team in HS! Her size turned out to be an advantage and the team's "secret weapon". The opposing teams had no idea how to cope with her.

I certainly know about the "needy" child. Maxim takes more time and energy than all the rest put together and it makes me feel so sad and conflicted. He seems to need this attention....but so does Sergei. I feel that by having Maxim we are shortchanging the other children (and for those who don't know me - Maxim is a foster child - it is our choice to have him or not). It is a constant anxiety.

Wife to the Rockstar said...

I hear ya. Thanks for keeping it real as always.

I have one child also who consumes more time then the rest. I also have one child who is extremely easy and therefore is easy to forget about. I have to intentionally make time for her.

Anonymous said...

Good morning Christine,
Ok here is what I found out.
Somatropin is the generic name, it doesnt look like you can just get a generic form but there are several different brand name companies...
Humatrope, Norditropin, Genotropin, Omnitrope, Saizen, and Serostim. They all seem to be comparable in price which is quite a bit less than what they are quoting you with the Nutropin. Serostim seeming to be the best price. I cant give you the exact price because that is a distributor price so it would be a bit more. I also dont know how much they are saying you would need, or how much they are giving you for that price. How long does she need to be on it?

Each companies website also has a support area for help with reimbursement and working with you and your insurance company.
Nutropin didnt come up on our list, I believe because it is the newest, and AQ the latest trendy expensive brand, convenience = expense, especially if 1554. is just 30%.
I also found a couple websites that could help, magicfoundation.org, which someone already suggested and hgfound.org

First I would check with your insurance to see what they would pay for each one. When you find out go back to your Dr and ask for diff. options, tell him you dont mind reconstituting it (if you dont mind)if that would be cheaper, if he is unwilling to work with you, then you might want to find another Dr.
If he lets you walk out the door then you could sort of assume he is in it for the money.

Hopefully this helped a little, even if for a little ammunition. I wish I could just order it for you at our cost.

Keri said...

Pharmacaeutical companies don't give kick-backs to doctors for writing their drugs. It is illegal.
Plus almost every company has a program to help families who have trouble affording their drugs. Check directly with the company through the website.

Anonymous said...

Ahh, thats a good one. Lots of things are illegal and there will always be some that break the law.

Kickbacks dont always just mean monetary, they also include educational, or research grants, dinners out, sports tickets, weekends at a fab resort.

When the first of the year rolls around there will be some major crackdown on this practice, you wont even see a pen with a drug name on it, no more pastries or lunches from the reps. Of course there will always be the exception to the rule and companies, not just pharma companies will find a way around it.

Dont assume just because something is illegal that it doesnt happen. I said earlier, I wasnt saying this dr is doing that, just that if he isnt willing to look at other brands that would do the same thing and cost less, then his motives "could be" suspect, not "is".

I also said that each of these companies websites have support that will work with you and your insurance company, but then again the big cigarette companies have stop smoking campaigns, go figure that one.
I could give you names of lfe saving drugs that cost pennies to make, yet they charge thousands of dollars and people still die because they cant afford them.
Ok see now you got me started and before I tick anyone else off, Ill quit.
This anonymous doesnt want to get kicked off Christines blog.

WheresMyAngels said...

My sister had to go back to work to pay for the growth hormone her son needs. His does will go higher and she doesn't know if they will be able to pay for it when it more than doubles in price. It will be 1000 a month then :(

Now another friend of mine' son needs it or he will die. not producing the growth hormone throws his blood sugars off causing seizures and strokes. Her insurance company keeps denying the claim, saying he doesn't need it as his growth is okay! He has already suffered one stroke. I think she needs to go public with this, it is very scary.

They thought about putting Mercede on it but I declined, I am glad I did as I had no idea of the cost at the time.

Prayers that Dennis eye heals and that things get better.

adoptedthree said...

Hi Christine
I am under five feet myself. Sometimes god makes smaller people to be the gymnast and cheerleaders of the world :)

My son is the size of a four year old although he is seven and half and gets tested tomorrow for the last test to see if he is deficient. We cannot afford the cost of the growth hormone either. I understand your hesitance, but girls are different then boys in the small department. It is much harder for a boy to overcome
Prayers on your decision

Leah said...

I think sometimes the kid being interrupted needs to learn to be patient, as well as the interrupter learning not to interrupt! (Which I guess is also being patient). As the oldest I just got used to younger kids interrupting and Mum shifting her attention, even if it was just for 5 seconds to tell them to wait.

Even now that I've left home, I might be on the phone to Mum and not get a chance to talk for 2 minutes while she reminds one child to have a shower, reminds another to do their homework and helps another get the printer to work. It's just part of having several kids :P