Tuesday, August 5, 2008
Dennis' Doctor Appointment
Today I took Dennis up to Valley Children's Hospital to see a pediatric plastic surgeon. The visit went really well in my opinion except that I was a little disappointed to learn that Dennis is actually only 21.6 pounds according to their scale. I guess our scale is a couple of pounds off (That means I am 2 pounds lighter too right?) and Dennis has actually only gained 2.6 pounds instead of the four I was bragging about a couple of days ago. Oh well, I think we are doing really well if that is all I have to complain about.
Anyway, the doctor officially confirmed that what Dennis has was caused naturally-- Praise God that he doesn't have to have to carry the burden of someone harming him. Dennis' eye, lip, cheek, ear, and scalp is caused from something called Amniotic Band Syndrome. In addition to what you see on the outside, Dennis also has a cleft palate. He also has Poland Syndrome. While this particular doctor will be involved in a couple of Dennis surgeries, he has also committed to head up a group of doctors to form a multi-disciplinary team so that a plan could be made as to what will be the course of action and what is to be corrected first. First thing Dennis needs to have is a Cat Scan. This doctor is also trying to get him into see a geneticist (who is typically booked out months in advance) so that we can learn as much about Dennis' medical issues as possible.
And thanks to a fellow adoptive parent who shared about how their local hospital didn't allow parents into the recovery room when the children first wake up, and how he wrote a letter and got them to make an exception, I am pleased to share that this hospital will make an exception for us too. I do think it is crucial that we are allowed to be with Dennis as he wakes up from the anesthesia. I believe that this will bring great comfort to little Dennis.
Meanwhile, the doctor has given me strict instructions to keep doing what I am doing because he thinks that Dennis is doing just awesome! You don't know how good that was to hear from him!